tag:blogger.com,1999:blog-12510183.post8582867463332137413..comments2024-02-06T16:06:25.170-07:00Comments on Sandra Dodd: New bed, more awakeSandra Doddhttp://www.blogger.com/profile/11853107998229753762noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-12510183.post-50927494022785861872019-03-22T06:49:22.036-06:002019-03-22T06:49:22.036-06:00That talk from a week ago, about you not being a g...That talk from a week ago, about you not being a good wife for not pulling the NG tube is definitely hospital related delirium. My mother in law had it every time she was in hospital for more than a day, which was often in her last year. Very unpleasant but she'd snap out of it as soon as we got her home again. It was hard to learn how not to take it personally but it was like clockwork. Jocelynhttps://www.blogger.com/profile/14248408036365594295noreply@blogger.comtag:blogger.com,1999:blog-12510183.post-54324170153015217342019-03-21T21:51:58.661-06:002019-03-21T21:51:58.661-06:00I know way more than the average person about AICD...I know way more than the average person about AICDs, but instead of explaining any of it (unless you ask), I'll just suggest holding onto the fact that it really might extend his life significantly, without all the trauma involved this time.<br /><br />The wording in typical printed information isn't very helpful. :-(<br />Most people seem not to want more information.Linda Wyatthttps://www.blogger.com/profile/06553620738632111900noreply@blogger.comtag:blogger.com,1999:blog-12510183.post-28994274801846471652019-03-21T20:19:33.721-06:002019-03-21T20:19:33.721-06:00I am very happy to hear about the progress Keith i...I am very happy to hear about the progress Keith is making, and I know the ICD stuff must be so hard to contemplate, even though it will keep him alive. Since you said you're really hoping that he will go to rehab/physical therapy instead of skilled nursing, I wanted to add a little info that I hope will help rather than be more frustrating. Basically, the way they decide these things is based on their evaluation of how much the patient is able to benefit from therapy, and whether or not they are able to do the amount of therapy involved. Rehab is generally 3 hours of various kinds of therapy a day, which is pretty demanding, but really designed to get someone back to functioning independently as much as possible in their particular case. Skilled nursing can still provide therapy, but when they do, it's maybe half of what rehab does, and basically just aimed at maintaining and recovering a bit. The evaluation is based on how much the patient can do for themselves, how much they are able to comprehend and follow instructions, and things like how far they can walk (with or without a walker) without having to stop and rest. I think the cutoff between rehab and skilled nursing for walking, for example, was something like 50 feet without stopping to rest (but it can be very slow). The physical therapists should be able to tell you, so you and Keith can understand what he needs to work toward in order to qualify for rehab. Either way, they are likely to approve a week or several at a time, and then re-evaluate.Laura Derricknoreply@blogger.comtag:blogger.com,1999:blog-12510183.post-15738705569042024882019-03-21T18:55:22.789-06:002019-03-21T18:55:22.789-06:00About the ICD, I read two studies—one from 2010 an...About the ICD, I read two studies—one from 2010 and one from 2016—of longterm problems, and that wsn't cheery. But there were longterm successes, too.<br /><br />The wording in the print-out the doctor gave me of patient infomation, and I am not changing a word, was this:<br />___________________<br /><br /><b>Can there be side effects to having an ICD?</b><br /><br />Yes. Your doctor will talk with you about the different side effects that can occur. Side effects can occur when a doctor puts in an ICD. People who have had an ICD for a long time can also have side effects. But most people do not have any side effects from having an ICD.<br />____________________<br /><br />I know the hospital is dealing with all kinds of people, and some don't read well. UNMH has promised translations into a dozen or more languages. Translators will do better with simple messages, too, but not only is it written at a third grade reading level (maybe fourth), with no contractions, with repetition, and the longest word "different" (three syllables), it doesn't really SAY anything.<br /><br />Unfortunately, those research reports I found said too much. What I read (just with a date and the first author) was 2010 (Sterlinski) and 2016 (Ranasinghe). I don't think others should read them, and we're not going to back out of it, but that's what I wish I hadn't read. Ignorance leaned more toward bliss.Sandra Doddhttps://www.blogger.com/profile/11853107998229753762noreply@blogger.comtag:blogger.com,1999:blog-12510183.post-39121378069899147192019-03-21T06:34:26.803-06:002019-03-21T06:34:26.803-06:00The survival rate depends on where you are, but fo...The survival rate depends on where you are, but for most places it is quite low (around 10% or even less), even for a witnessed arrest (which has the best odds) because so many critical things must happen in the first 5-10 minutes, and that isn't always possible. And even when it is, it isn't always successful.<br /><br />It is delightful that he is talking about checking accounts and mundane things!! That's fantastic!<br /><br />I'm glad he continues to improve. I'm sure the hospital staff who were there the first day are thrilled, and just seeing him makes them smile.Linda Wyatthttps://www.blogger.com/profile/06553620738632111900noreply@blogger.comtag:blogger.com,1999:blog-12510183.post-91559828054317050262019-03-21T00:03:47.176-06:002019-03-21T00:03:47.176-06:00Sandra, Ross throws up whenever he is given Oxycod...Sandra, Ross throws up whenever he is given Oxycodone or similar narcotic. He always asks for anti-nausea meds along with the pain meds. Perhaps Keith is sensitive to those things, too.<br /><br />Thank you for keeping us all up-to-date. xoRobinnoreply@blogger.comtag:blogger.com,1999:blog-12510183.post-15704170967690290382019-03-21T00:03:05.099-06:002019-03-21T00:03:05.099-06:00" Keith is alive, complaining about food, and..." Keith is alive, complaining about food, and talking about when to pay which bills." This is the best news I've heard since this all started ❤️ Thank you for all your updates.Anonymoushttps://www.blogger.com/profile/17875894859686628712noreply@blogger.comtag:blogger.com,1999:blog-12510183.post-52189498644810836742019-03-20T09:44:28.656-06:002019-03-20T09:44:28.656-06:00I'm sorry you and Keith are having to go throu...I'm sorry you and Keith are having to go through all this. You certainly have my sympathy. You are in good hands, I believe. But, oh, the uncertainty of it all. I hope he recovers well and thoroughly, and you can get him home soon.Flonoreply@blogger.com